We Want To Go Home

The third day here feels like the 30th. Luke has been crying to go home since day one. Uncle Todd and Uncle Mark came to visit last evening along with our dear friend Wendy and her sister. The company truly makes the time go faster. The best part of yesterday for Luke was when his brothers were here. He played with his new Star Wars toys and Luke seemed like his old self. He could only play for a few minutes and was then exhausted. They were the best medicine for him though. The time that they were here made him forget a little about wanting to go home. Before they left last night, Luke held out is arms for his little sister and smiled as she hugged him.
He ate a peanut butter and jelly sandwich and some mac n' cheese at supper, but began to run a fever around 6 o'clock. It was 100.8 at hat time and his face was very flushed. About an hour later it climbed to 101.5. We were fearful that this may be the beginning of something bad that might prolong Luke's hospital stay. Fortunately around 10pm, his temperature came down to 99.0 and has stayed down the rest of the night. He threw up his mac n' cheese after taking the oral Tylenol. Will we still get to bring him home today?? I pray that we can, but it's not looking too good.
Randy spent the night with Luke and for the first time since surgery, Luke walked to the bathroom. He began to fall backwards while walking both to and from the bathroom and Randy had to catch him each time. I would suspect that this may be normal after such a surgery, but the pediatric neuorsurgeon resident that saw Luke very early this morning said that he would be having a Physical Therapist come to see him today. I hope that this doesn't mean that it could be a problem.
Luke's face is much less swollen today and we are anxious to see him without the bandages and ace-wrap on his head. His IV is disconnected and will remain that way if he can eat without nausea and vomiting today. He is still having quite a bit of pain, especially in his neck.