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Luke, our 5-year old son, was initially diagnosed with Scoliosis and soon after we discovered he had Chiara Malformation and Syringomelia, all of which are most likely related. Our seemingly endless search for information was the best thing we could do as parents...and the worst...
About Luke
Luke is a 5-year old boy with 2 older brothers (7 and 11) and a younger sister (1). He loves soccer and baseball and enjoys watching his favorite Star Wars movies 3 or 4 times consecutively.
Blog Archive
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2008
(25)
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July
(14)
- Week 1 Post-Op still a struggle
- Slowly getting better
- Potential complications...
- We made it home
- Good News!
- We Want To Go Home
- Luke continues to fight for a fast recovery
- Luke's Recovery proves difficult on 1st day
- Luke's Chiari Decompression Surgery appears succes...
- Luke Arrives at the the Ronald McDonald House
- Shriners provides Luke a brace for treating Scoliosis
- Luke scheduled for surgery at Hershey Medical on J...
- Parents shruggle with decision who should operate
- Second Opinion from Johns Hopkins Neurosurgeon, Dr...
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July
(14)
12 comments:
Please let me know if you need anything from Carol or I. We are keeping you in our prayers.
Luke it's the day of your surgery and we just wanted to let you know how much we love you and will be praying for you. You will be in our thoughts and prayers and we will be there to visit you after it's all over! Kasey can't wait till you can come home to come swim in her new pool! You are our little Lukee and mean the world to all of us. We love you buddy!!
Aunt Wendy, Uncle Todd, Tyler, Ryan, Jordann and Kasey.
Hi luke this is kasey i hope you feel better soon i love you!!
Hey Luke(: its Tyler..i hope everything goes good and im praying for you,love you buddy!!
heyyyy lukeeee..hopee everything goes okay todayy. everyone is praying for ya bud. love you buddy.
dear luke i hope your surgery goes well its eric granny and jonny and kira we love you so very much.
Hi luke Skywalker ur lucky beacause here at home we have to do work granny is being rock girl kira is a supervisor, love Eric jonny kira and granny
Dear preicous luke, we are praying for the LORD to direct each and everyone who is in your care at this moment until u are better. MAY GOD bless u.We love u.
dear luke its jonny I hope that you did well on your surgery.
YAAY! you made it luke ur finally done, or u should be, love from eric... PS the doctor said you could be home on friday.
mee maw said to tell you she is glad it is all over and she is still praying for u with love
HEY, LUKESTER,
Hope everything turns out great for you and love you...See you when you get out. Glad to see you are doing pretty good. Don't forget, Luke, "I am NOT your father" says Darth Vader.
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